IPCSG Vol Mtg 2025 12 19

See, let's put away some of these here. Um,

it's hopefully it's not going to be uh asking me to sign because hopefully it won't be asking me

to let people in on not the best uh wave. Hey, I saw, you know, I was going to jump in myself and then we kind of got chasing kids.

>> Go visit the little boys so I ready for this. >> Excellent. Where to go for that? I' got to try to print out some more of these. I think you have to

up here. There. That wasn't your pen, right? No, got my [Music]

I tried to print and just decided no thanks. Not going to let you get it all. No committee. Okay.

Um, so I need to try to print this as fast as I can. Print error offline

that is not selection. Print. Print.

Just documents. Um. >> Hey, Aaron. >> John, is that you? >> Yes, sir. >> Oh, hang on. Let me get some volume all the way up. Uh, say something again.

>> Something again. >> This is really low audio. Do you have the ability to um Can you hear me still by the way? >> Oh, I hear you fine. There it >> goes. Now we >> That's better. >> All right. Okay. I I was able to switch

to the external monitor. Um great. Great. Okay. And then it didn't ask you to wait or anything. It just allowed you to connect in directly, right? >> Yeah. without a password or anything.

>> Perfect. Nobody has an excuse then. Uh let's see. Diego Public Library. I need to print services. Print

print scan cost print ids. Uh where are we? We are in Pacific Islands ranch

wrench. All right. Total pages set terms. Click here to select and upload a file documents committees

pages. Continue.

works. It work. >> Hello.

>> Hey, Mike. How you doing? >> Good. You? >> Good, thanks.

Okay. Print is printing. 1012. Okay. 101. 10:12. 1012. Mike, where was the restroom? >> Oh, all the way down the end of the hall. All right. John,

one

happy Friday. All right. Took a little maneuvering to get here. I wasn't your roof. Yeah. >> Yeah. It's a very small building. >> I've never really been out in this area.

It's not much. >> Yeah. >> It's new less than less than 10 years old. >> Which is pretty new. >> Yeah.

Library. >> It's real new compared to the East Coast. Yeah. Guys, morning.

Hey, how are you? Good. How are you? Good. >> I'm John, by the way. >> John, nice to meet you, Marty. >> Marty.

>> Hello, Marty. >> Hey. Hi. How's it going? Actually, I'm over here. Oh, there you are. >> Kind of scary. >> Yeah, we got a pretty good snowstorm going on here, so I'm staying warm in the family room. >> Nice.

>> What part of San Diego are you in July? >> Ozark, Missouri. >> Oh jeez. >> Oh, really? >> Wow. >> Cold country. >> Will

I guess you're welcome. Is that an AI talking to us or some person? >> It's a real person. >> Yeah, he's behind one of those screens on there. >> Left it on this one for us. >> Fair question. >> That AI, you know, a lot of things they

do. They read things electronically and they don't pronounce the words right. >> Oh, is that right? >> Yeah. They messed up on >> Well, especially around here, you know, like people say okay instead of stuff like that. It's it's a difficult location for some of the strange words,

>> right? >> Garnett >> some of them were probably under you know I mean AI is pretty >> you know they stay

>> Yeah. No, it's just algorithms. >> Yeah. >> Yeah. It's interesting for sure. >> Impressive. Oh, you know, but so I've been waiting for Elon to come out with a self-driving car and he hired a guy did it all, you know, rules based,

you know, so this happens then, >> right? >> And he fired it. I mean, because I mean, they just weren't getting there, >> right? >> And so he fired a guy that knows how to do uh computer learning. >> So they have millions of hours of the

best of what humans do, you know, every situation. And so now they're training the computer based on humans at them and they might get there. >> And not only the best what humans do, but sometimes the mistakes have been made. >> But I read the thing that they had a car

>> and the guy invented it and he said, you know, it was the perfect blend between humans, >> you know, I mean computers, you know, songs, >> right? And they said that >> nicely asserted,

>> but it wasn't >> it wasn't in your face, >> you know. So they kind of went when you should go, right? >> They didn't just like wait for everybody to go. >> Make sure 100% clear. >> Yeah. >> Yeah. So pretty impressive. Well, if they can figure out that whole four-way

stop thing when everybody comes there at the same time, you know, that's that's the tough one right there. >> Yeah. You know, it's like, wait a minute, he's supposed to go, but he's not going. So should I go? So I start to go and then he goes, you know. >> Yeah. Yeah. But the competitor has the control of the headlights. So just a flash in the headlights will will give

the other car, you know, hey, I'll wait for you. >> Gotcha. That's good. >> Because it doesn't have a flash or I'll just wave my hand. >> I was in the UK for a month and I'm telling you, they didn't use their headlights a lot for that over there because there's a lot of places where it's one way. Yeah. >> And so you got to flash, >> they've got a flash to know who's going.

>> Otherwise, you could just sit there and look at each other. They're >> driving be a flash. All right, let's see. So, Bill Manning should be here shortly. There's Mark. I think they tell him there's downstairs

to him. >> Oh, yeah. >> If we run out of chairs, let's go ahead and grab some chairs from outside there. >> Just a few. A few. I travel a lot, so

I've missed a few. But yeah, >> it's been great started. >> I guess everybody started. >> I was big.

>> Oh yeah. I don't know. [Music] >> Everybody knows. >> Maybe I'm at the wrong meeting. >> Could be. I'm going to >> She's the uh navigators.

>> She did her and and the navigator from script did did the program a couple months ago. It might even competitive. >> Yeah. Paul waves down. >> Why don't we just slide down? >> Do you guys mind taking those two chairs, sliding them down, and we'll kind of slide all these chairs down so

that >> it'll be easier. Great. >> Yeah. Yeah. Just kind of like trade out your chairs. >> Put another chair at the end. >> No, you can stay at the table. I'm saying just take your chair, pass along,

and grab the next chair down. You follow me? >> I think we're all right. >> All right. All right. >> Thanks.

>> You want that one? I'll take this one or >> Ah, good. John, I'm glad to see that you got my email. >> Yeah, that snow >> slide a little bit. Okay, let's see.

We've got two, four, six, eight, 10, 11. >> There might be one more person coming, but a couple people uh things came up at the last minute and they didn't move it, but I think we've got everyone. Um so,

thanks everyone for coming. Uh hopefully this was generally convenient for people. I know that um uh John was a little bit of the odd man out being in La Mesa, but I know we had people coming from everything from Carl's Bad Desk, Candido, so I hope that this was

somewhat amendable to most people. Um online, we've got John Love. Uh Horus Barton is actually John Tassy. If none of you have met him, he is our web master. Uh used to be here in San Diego, but he moved to Missouri what, four years ago now? Five.

>> Yes, sir. four years. >> Excellent. Excellent. And I do have a webcam in here so you can see some of us. I'll try to even move it a little further away. >> Yikes. Yikes. Who is that? >> Yeah.

>> Um, so great. Yeah. If we run out of chairs, feel free to grab a chair uh outside there. >> This door does um >> Yeah. >> Oh, yeah. Go ahead and grab a chair up here. There's also um yeah, chairs outside. That door obviously just locked, so let people in if they if they

are trying to get in. Um all right, so I wanted to start out by well thanking you all for coming. I know it's a lot. Um uh but this is a pretty important meeting. Um we haven't really met as you

know board or volunteers in a in a really long time. Um, and so a lot of things to kind of talk about. I want to start by going around the room and why don't we start with you, Phil. Just, you know, let everyone know your name and perhaps just like how many years you've

been coming to meetings. >> Well, I've been probably coming five years. I'm the um catering guy for the lunch. >> Appreciate that. >> Yeah. Thank you. >> And uh enjoy doing it and I learn a lot. So, >> great. >> Thanks for having me. >> Great.

>> Uh I'm Marty Miles. I've been coming for about 6 months or so. Uh only made a few meetings due to scheduling issues but uh diagnosed about a year ago and um so come my way through. >> Great. >> Mike about a year and a half or so

about a week and a half ago finished the last game. Great. >> Congrats. Congrats. >> I'm Neil Nation. I've been coming about two and a half years. >> Um also just stopped treatments in June. Um, that's

great. >> Great. >> And Bill, >> Bill Manning. Um, I've been coming for 16 years. I've been on active surveillance for 16 years. >> Excellent. >> Michael, eight year prostate cancer

manager. I've been coming about two years. Dan Mowski. I've attended these meetings probably maybe three or four years off and on a cancer prostate cancer survivor

therapy LDR back in 2018. >> Okay. >> Wow. >> My PSA went up went down from that was an outpatient procedure if anybody knows that's internal radiation. >> Right. Right. Right. Okay. >> So my prostate went down from 9.5 to to

to what I'm fighting now. >> Well, hang on. We're not going to talk about any of our personal history. Mainly just to meet everybody, I think. So, >> my name is Don Watts. Coming for about three or four years. I'm a 25year-old

survivor. >> Excellent. Excellent. >> Really enjoyed the last three years and learned a lot. >> Excellent. Mark. >> Yeah. Mark, I've been coming here about three years. Uh my journey started in September of 2013.

>> Excellent. John >> John Bradley I happen to be the treasurer and I've been coming for three or four years. All right. Bill Dile been coming about two years. Uh just had a prostate biopsy yesterday. Feel pretty good actually. Um

>> better than I did after mine. are coming >> testament to the >> I recommend doing the under sedation >> it'll bring a tear to a glass eye >> and online. How about you John?

>> Hi John Love. I was diagnosed five years ago. Uh currently active surveillance. I've been coming to the meeting sporadically for the last five years. I love all of you guys, but this is my least favorite club that I belong to. >> And uh uh John Tass.

>> Yeah. Howdy. Uh I've been with the group since 2009. And uh it's a great group, but San Diego is unaffordable. So now I'm in Ozark, Missouri. >> Gotcha. And Vlad, I see that you joined. Uh Vlad, if you could.

>> Yes. Can Can you guys hear me? >> Yep. >> Okay. So my name is Vladimir Domirich. I've been coming to the group for the last year and a half. U I am on the active surveillance right now and um I really enjoy the meetings and uh

listening to all the experiences and all the advances in the uh in the area. So yeah and I'm helping I'm helping with the greeting and uh and the signs. >> Perfect. Perfect. That was what uh I was

about to add about him. So, um, from here, what I what I want to do is give, um, actually that was a little bit later. So, part of why we're here, you know, um, as a 501c3, uh, we're supposed to be doing certain

things, you know, anybody that's been on other nonprofits in the past, uh, know that you're supposed to like have a board meeting every year. You're supposed to elect officials, that type of thing. We've kind of been neglecting that a little bit, so don't anyone tell the government. um so we can keep our

status. Uh but today I want to organize um really the organization a little bit better, identify goals and priorities uh with timelines and assign some some jobs that might not be covered right now. Um

let's see, what was that? I'm trying to get everything to line up here. But one thing I'm realizing is that I think there were two people here that might know the name George Johnson who was the guy that doing the facilitator job prior to me. And so you've only seen this

organization as part of me with whatever limitations I've I've failed to uh uh um get around uh telling you more about the organization. So, I'd like uh Bill Manning to, you know, take a couple minutes to explain to you more of the

history of IPCSG, you know, the the original purpose, you know, how it came together and and and so forth. >> Okay. Um well, prior to my getting involved with it, uh it started off as a very very small group meeting at a

church within group. Um from there to meeting at UCSD, it was run by Ly Ro at the time. Uh Ly was a mover, a shaker in San Diego who knew a lot of business people. Um and the and then Jean Vanle

came on board became the treasurer and >> thanks again and the group grew uh considerably from where ended up

where we are now in Sanford Vernon. Um in the beginning obviously all the meetings were live. We had a lot of speakers. Some of them were kind of cutting edge for the different um modalities that were presented such as

PSMA and using multiparametric MRIs which back when John and I first got in this group uh didn't exist. Um and so IPCSG was really on kind of on the cutting

edge for a lot of technologies that eventually became mainstream. So we had anywhere from 60 to 100 people consistently at all the meetings and uh we were a considerable resource for guys

u diagnosed or guys that had fallen out with their urologist and so on and so on. Um, so all that took a big left turn with CO. Um, and then when we went to

Zoom, uh, Lyall Lar Ro passed away. Um, Jean basically took over, but as uh, Aaron mentioned, um, he he was kind of like the guy that got on the boat and was supposed to be the assistant captain,

and they said, "Yeah, we'll just have you fill in every once in a while." And then the next thing you know they drag him from below deck and say, "Oh, by the way, the captain just croked. You're the new one." So, I mean, he literally got thrown into this position uh with like

one month training. >> Um, and it's only grown since then. So, I also want to tip my non-existent hat to Aaron for all that he's done from that day of being thrown into the fire with um not a hell of a lot of

preparation. You know, thank you for that, >> Erin. You do a tremendous job. We all really appreciate it. >> Thanks. Really appreciate it. >> I just want to get that quick plug in. So, uh, now that the group is meeting live again, um, I've been the videographer since 2010. I shot the

videos, I edited, and I mastered DVDs until DVDs kind of went the way that I saw. So, and that coincided with CO and moving to YouTube and not really them anymore. And then I was still I came

back and was still shooting video until I became caregiver for my wife. In fact, the reason I'm here is because she's in a Alzheimer's dementia day program right at this moment. >> Otherwise, I wouldn't be there.

>> Yeah. >> So, I could no longer shoot. That's why Patrick, the associate, took over and I continue doing the editing. So, that's you know, cliffnotes version of IPCSG. Um, but prior to CO, uh, we were quite a

force in San Diego. Um, and that's kind of diminished a bit because of, uh, the explosion of, you know, Zoom and YouTube and so many other sources. It's it's made made that job less unique

than it was in the very beginning because we were very very >> Yeah. >> Yeah. Continuing a little bit of that history lesson like when the organization was formed possibly one of the reasons they met at UCSD was because well we got to go look for some medical journals couldn't just like search for

these uh documents on the internet >> right and even with you know DVDs like the only way that somebody could access our meetings if they didn't actually you know attend was in our library that we have ever on the Saturday mornings

here's the DVDs from all of our last meetings for the last couple of years and you could buy it for 10 bucks and stuff. So, we've changed right quite a bit from like and and also, you know, uh I came in at the tail end of the the fiasco of not bothering to test PSA

anymore and ignoring the results, which IPCSG was like, "No, no, no, no. We got to get out there and tell people they got to still test for PSA." >> So, you know, in some cases, the technologies changed. Um the message has changed. you know, doctors even have

even changed from you're just going to do what I tell you to do to patients being told like here are some options and as a doctor I'm not even going to tell you the best one you know and a lot more burden is put upon us. Um, so I just kind of wanted to kind of, you

know, uh, share that, you know, with everybody in terms of what the journey was and and and certainly the part of what I remember from like George and Gene telling me stuff from years ago is, yeah, they would get around the kitchen table and share medical journal stuff of

like, here are the the the clinical trials going on right now. you know, this is the the new information that we've got to, you know, get out to other people, uh, get it in their hands. Something else you wanted to say? >> Well, I was just going to say on the cutting edge

respect of RPCSG, even for example, PSMA, which is now uh very common place. Well, we had a speaker, I can't remember the doctor's name at this moment, uh, who came and presented this new cutting

edge technology that you couldn't even get in the United States at that time. You had to travel to Europe or Australia in order to get it. >> So, that just shows you how far ahead we were, you know, at that time.

>> Yeah. A lot of, you know, we were getting people to go up to Marina Del Rey to Dr. glam. Um because UCSD didn't have doctors, you know, on his caliber at the at the time. >> Wow. >> Um you know, when I joined eight eight or nine years ago, uh it was all about

the C11 choline scan and you'd have to go to Arizona to get it and then, you know, since then oxammen and that's kind of, you know, even gone and been supplanted by PSMA. So, it's like a lot of changes so forth. So, yeah. Anyways, thanks for filling us in on all that. Um

so one of the things I then want to mention is that um you know when I came in uh my first meeting I just found out a week before that my my surgeon had botched my an diagnostics and I was actually stage

four uh postsurgery rather than stage two or three like he'd hoped. And you know this organization really set me on course got me in with Dr. McKay like Bill Lewis was, you know, fantastic at at at getting me to a PSA of zero today.

You know, this organization got me to a PSA of zero. Um, and so that was part of the reason why I decided I need to give back to this this group and was, you know, so adamant about, you know, being part of one of the member roundts, um, and, you know, uh, taking over the role

of facilitator. But the time has come for me to take a step back and reduce my involvement and have other people uh step up, fill the facilitator position, um you know, uh sign up uh uh other um

uh speakers and so forth. I'm not going to disappear overnight, but you know, I want to kind of phase things out. You know, for example, I think we've got either four or five uh speakers set up through from February through May. I'm

not going to sign up any more speakers myself. So, you know, that job's got to get handed over. I'll facilitate some meetings, hopefully bring others on board to do that. Um, but we got to discuss like how we're going to do that here and and who those people are going

to be. So, before addressing that directly, um, I know the organization is kind of a little bit amorphous in terms of like people do a lot of different things. Who knows what everybody's doing? see some faces on occasion. We don't see the likes of Mike and Bill

whispering in my ears, you know, giving me all sorts of hints and so forth. Um, and so what I wanted to propose was, you know, a committee or uh uh organization, you know, which is not really any kind of different than what we're doing right

now. It's just making things sound a little bit more formal and like oh yeah okay yeah the finance committee that's John got and and you know perhaps me right now in terms of keeping track of the costs you know uh tracking all the

the uh the donations that come in and and and uh that that come out. So what I want to do is I have a few printouts. We kind of have to share at times. Um but um why don't you pass these around um but there's definitely not enough for

everybody. So um I am going to share this online with the other guys too if I can remember how to share uh share

[Music] >> entire screen. So >> uh guys online are you able to see this?

Did it share? >> Yes. >> Yes. >> Okay. Great. Great. We're missing one column there. Okay. So we kind of need to have a steering committee which is kind of like the board the board of directors and so forth. High level like

where's the organization going? you know, dealing with any high level issues and so forth. Um, there's a finance committee, you know, we've got costs, we've got donations that come in. Uh, there's I think there needs to be a separate facilitator committee for running, you know, the meetings, signing

up, um, different speakers and so forth. I'm lumping together communications, marketing, and research. So if we think of that, that's like all the website stuff, emails that go out, newsletter, um the the uh blog that uh Steve

Pendergas is now putting together, you know, anything else that we want to go do from there. For example, back in uh back a year ago, Bill Lewis was having people post to Instagram and Facebook, you know, advertisements for our group, you know, trying to get a message out

there, some videos, and so forth. Um we also have u you know a group in the front office uh sorry in in the front lobby at our meetings that are uh receiving the new members um greeting them at the door uh having them fill out

those uh contact forms telling them even just what to do setting out the signs at the street an hour uh ahead of time. Um, sorry. And that that's more of the welcome committee, uh, actually. And I've I've lumped into that the the lunchons as well that that Phil and

Michael have been putting a lot of, uh, time and effort into as well. Um, and then there's also what I'm calling the new member reception, you know. So, uh, hopefully when you guys all joined the organization, you probably got a phone call either from Bill Manning,

Jean Van Vleet, or Bill Lewis talking to you for maybe an hour as to what you might need, you know, what your situation was and so forth. I've done that from time to time, but, you know, it has gotten to be a burden, but it is an important thing, right? I had a guy

contact me from the UK telling me like, "Hey, this is fantastic information I can't get in the UK." I had a guy in Washington call me up, sorry, email me, and then we ended up having four different phone conversations for hours at a time about, you know, what he what

he has access to and what he's doing and so forth. He turned around and gave us two or three donations of like a $100 each. Um, and so it's it is really helpful. uh you know, one guy came in with in his 40s with a PSA over a

thousand and you know, it's kind of like, you know, you're not really taking your situation as seriously as I think you need to. >> Um, and also doesn't seem like your doctor is taking it as seriously either. How about, you know, getting a second opinion, here's a good name to to

contact and so forth. So, you know, that in and of itself is a is a a pretty important um thing as well. So, um, what I what I handed out is is kind of an overview. It's it's a guess at people

that either are already doing those types of tasks, uh, um, uh, perhaps people that could be added into those types of communities, uh, committees and so forth. And I think as one of our priorities today, we might want to try

to expand or or refine that list of people because I don't think we'll get everything done today that we want to. I think we're going to want to uh meet again, maybe as this whole group in January, maybe as individual committees

if we can say like, "All right, here's the pool of potential facilitators." I'll go meet with them and teach them a lot more about what it is that I do and so forth. But I wanted to hopefully show, you know, what it is that um that

I think that this committee structure would would handle. Anyone got any questions on that? >> Go to the top of the screen. >> Sure thing. Yeah. >> I haven't actually >> I'm also happy to email most of the

spreadsheet out. I've got a few contact information in there, but I'm kind of putting together all the information that I've got in my brain and scattered around. You know, there's doctor contact info in info. There's like when have we had these people in, what's the schedule for the upcoming year and so forth. I'm

not going to pass out doctor contact information, but I I will pass along all of this uh spreadsheet information um um yeah to to anyone. Um any questions about about this or do you think any

discussion that you want to have on it at the moment? >> I think I can understand so it's been unfair. >> Uh it's okay. You know I wanted to give back. I feel I've given back you know.

Yeah. Um all right. Next thing I want to pass out is a little bit more of a detailed task list. And this we won't go over in detail, but this is what um just to help elucidate like this is what I

believe what a single monthly meeting actually entails. And uh let me get to the next uh thing here. >> I know, sorry guys, online this is a little bit small. Um

first is an overview. This is the whole thing the way it looks. Let me uh zoom it back in though. Right. So, and actually this tab is it it has a a lot of stuff. Let me even see if I can

>> autohide the ribbon. Always show ribbon. Autohide. Okay. So, there are a few people that do tasks annually. Uh right. We we have to renew the website. Uh we have director's insurance. Um we have auditors. uh tax form that has to be

submitted, other legal review, etc. Um, as needed, there's, you know, John has been sending out donation thank you letters when we get sizable donations. Um, John Tassy, uh, emails all the members. All of those emails that you

get, John spends time putting those together and and making sure they all go out. And, uh, the GoDaddy web interface is not the easiest to use and it changes on a monthly basis. Um but but here you know this is kind of

like the timeline of of what happens for a meeting. It kind of even starts more than four months out in terms of recruiting a speaker. Um you know that's handled by the facilitator. Uh we might have such things as member roundts and have to identify multiple people and

then even you know um uh coach them on as to what the content of a of a talk would be. I I have frequently um helped about half of the people out develop slides, which you know isn't that hard to do once you have like an outline of

what they're going to say and so forth. Um and you know, I've put in here like, you know, when I give a oneweek update, one week confirmation email, make sure the doctor is is on is in line for showing up. Here's all the things for

meeting day. you know, everything from calling the the Sanford Burnham uh security guard to let you in the front door, uh the videographer setting up, um so forth all the way to cleanup, which you know, many times Phil, Michael, and I are there still at 1:30 or 2 o'clock

in the afternoon uh cleaning up and then even after uh the meeting is is done, there's some amount of uploading the slides to to Bill for editing. um you know there's updating the website with the next meeting description

uh thanking the uh the speaker and and so forth. So, what I'm partially trying to do here is just, you know, make some of these tasks less uh nebulous such that it seems easier for people to step up and be like, "Oh, hey, wait. Here's

the checklist of items. I can I can do all of these things, right? I could be a facilitator, too." Um, it's a nine chart. You know, you can look at it later. We don't need to go into it in detail, but it is is there.

Um, I have probably gotten off agenda a bit, which did I even keep a copy? Let me I'm gonna steal here. Steal this one bag. Um,

right. And I think I skipped over I was gonna ask Mike if he wanted to at this point redirect my uh lack of experience on running such a meeting as this. You know, in terms of hey, all right, you know, Erin might be getting too into

some details here in the scope of the hour and a half that we got left. What is it that we want to >> Thanks. Um, so I was in the insurance business every used to hold strategy meetings and I led

those. So we had a goal. The goal was to improve the organization. Sometimes I meant adding new things. Sometimes I meant purging old things. Things could be described as simply software. It could be processes, you know, etc.

Everything was up for grabs for discussion. Um the idea is like um taking a piece of clay that had no shape, no warm, etc. kind of squishing it around until it starts to look like a little pony. And

then you start to cut it, start to get detail. These are process steps, you know, and then at the end we're kind of polishing it until it's all pretty in what we want to do metaphorically in this meeting. We want to start by

thinking broadly, think out of the box. If you haven't done something, that doesn't mean it's not valuable and couldn't be valable. So, if we could with would you stick a sticky up on the wall and got one already? >> Got one already. >> So, one of the things that we found that

was helpful was um we started Aaron pushed out an email to you to listen thinking about, you know, how we could grow. So, would you have one or two thoughts or things that you would like to see come out of this

meeting? In other words, when we're done, it could be complete when we're done at this meeting. It could be that it's logged as a process that needs to happen so we can improve the meeting. Um, whatever it is, if it costs money, if it's free, if it's, you know, giving

capital time, whatever that might be. So, if we could just go around the room and say, "Here are the one or two things I want." And just nice short descriptions. I don't We got an hour and 26 minutes left, so

we're going to try to move quickly at the process. And I'll start with you if I may, and we'll just come around the room. One or two things. >> Yeah. Well, honestly, um I'm still kind of new at the whole thing. And um there's a couple things floating around in my head, but I really just I want to hold off. you know

>> outside actually outside new input is more valuable than somebody who bring new ideas. >> What's one thing that you expected to find then you didn't? >> Um so so the the path I'm I'm really

interested in more than anything at this point is alternatives. And so that's really where uh where my brain has gone. And it's also, you know, my disappointment in my current journey so far. So, yeah, alternatives would be that I'd really

>> I'm the lunch guy. So, I think it's uh very important to have the social connections and trade information at the end and the food is the glue that keeps the social >> activity going. Well, thanks guys. took my sole,

>> right? >> Um I'm kind of thinking is um some sort of contingency plan. Um Jason's point is if we should lose the um the venue is we have some other place to fall back to along the way.

And some other things are and I think Aeron's alluded to this uh indirectly but some succession planning some sort of for maybe some sort of mentorship first grooming people to move into positions that people leave and

stuff. kind of really >> um >> that's >> that's the only I can think of is um I don't know if Erin's thought about that

but see any sort of contingencies for um speakers in case somebody should fall out at the last minute. >> They have. Have you not noticed? >> That's maybe some program stuff or anything like that that could

>> exhale in. >> Yeah. >> Uh be it um any sort of video or something like that to present as a fallback or or um I don't know some pre pre-programmed um

slideshow. >> Excellent. Um this is feedback from my wife who's been my loving caregiver that she has

attended several meetings would like um more presentations on dealing with processes that caregiver um some of the resources that maybe

That's a good one. >> Yeah. >> Yeah. So this dawn on me it's um this is the um that you mentioned we've had other people come in that are not

affected by but maybe influence that we need to um increase our scope a little bit or decrease our scope >> on um would be on the doctors treatments beyond this prostate

>> is it does it make sense to or decrease moving into bladder and yeah exact I don't know >> a great idea

>> scope or define focus >> so that next >> well from a logistical standpoint um maybe expanding the content on YouTube

um to include either video shorts or more um summary and description of the media itself and try to do that in a format that's SEO friendly that's going

to >> what's SEO >> search engine optimization >> so people can find you that would be something

>> that that's a good point because you know at times in the past it's like we advertised in the Union Tribune no one saw the articles it was expensive right we'd ask who saw the post on Facebook maybe one person >> right it's like when you when you search prostate cancer San Diego we should show

up first >> showing up first would extremely >> if you get the top 10 you're doing >> maybe the other support groups that are

out there making sure that you know our information is available yeah we did it at the symposium last year >> that's a good point and also not just like um just a little bit center here what was really useful to me especially

being much younger was meeting with breast cancer survivors because there's such a sexual identity aspect to all this. It was reassuring for somebody who had just lost everything to be like, "Yeah, this is how I feel now." It's like, "Oh, wow. I'm not the only one."

>> Yeah. So, sorry. Um uh uh uh getting info to other other marketing groups

All right, next. I've got a couple. One would be that I'd love to see us develop some strategies for increasing physical attendance of the meetings and look back to precoid types of attendance because that's where

the juice is for the organization. I believe um interacting with each other, tapping someone on the shoulder and say, "Hey, can I chat with you for a minute?" He goes, "I heard you say blah blah blah. I identify with that. I need to help,

etc." So, if we can come up with some strategies to do that and then um we got 900 folks that we have email addresses for. >> Yeah. >> So, we have email addresses. I'd like to

see us develop the strategies for qualifying those for lack of a better word. Meaning you've got 900 people who have names in the best score, but if only 350 of them are actually >> Yeah. Well, I mean, do we do we send out emails to all 900 and and so we have a

clean list of >> Exactly. Exactly. Yeah. Just push an email out. Those who are nonresponsive, we don't throw them away. we just carve those off in a separate bucket or they're unresponsive and then maybe six months later we push out another email get we don't want to lose them

>> and John Tassy might actually have some info about that because uh the way the email campaign goes I think you actually can see if somebody has opened the email as well as whether they've clicked a link inside of it or something like that. So yeah I that info might actually

be available decently. >> Yes, it is. >> Excellent. Excellent. Well, thanks. >> Um, one of the well, several of the things that I I really appreciate attending the

the meetings were the invited guests, the doctors that were invited, specialists. I learned a lot. One of the things I'm battling with right now are the side effects of growing treatments.

>> I'm battling I'm having a lot of problems with contining

nothing. He was a pharmacist. Take this drug. Take this drug. this will help you. >> And I've gotten nowhere. So, it's it's impassing my quality of life. >> Yeah.

>> And I haven't spoken much about that myself in my experience, but I do have a good amount of experience with that. Let's talk some. >> All right. >> And your name, too, please. >> Jim. >> Jim. I've been around a while, but I mean that's first of all, uh there's a group

in South Bay that puts on a golf tournament. It's one of the biggest in San Diego County. They make Google for us. I don't know if you're interested, but what really I think needs to happen is maybe we contact them or we start working together with them. I do not

know actually what they do with the money. I really don't. But they're pretty they're pretty active with this one guy. They're with the consortium. >> That's a that's a good point. Actually, the group used to have maybe you can say more about it. group used to have an

annual fundraiser. Lyle, the original president, was best friends with everybody, but also with the owner of the Hornblower cruise line. So, you get the hornblower free for the night and you know, donations galore. So, resurrecting that might be interesting.

>> So, the other thing is caregivers if you want to expand maybe the meetings because they see a lot of wives coming. Well, obviously if you're married, that's really going to affect their life. lots of I'm old school. I'm I'm here or I was started in 14 I guess or something

from an article in the sports not an article but a thing in the sports section. >> Yeah. They talked about the meeting, you know, and I know everything's online, even the paper's online, but you know, I think and that cost me

>> it got pretty expensive for the number of people who said that they were >> part because they should be able to offer, you know, that to a nonprofit. But I guess because >> they've got a lot of nonprofits. >> Yeah. Yeah. So that outreach.

>> Yeah. Yeah. But we can assign like hey what committee should talk about these things >> and then last thing is that but I think we lose a lot of people because we're cured or we think we're cured and so we never come back you know you guys have done a great job save my life that's

great so well kids >> yeah and that might be a very good place where we can get some of those people who have been through some experience and treatment to you know be online for hey can you answer this new person's questions about radiation experience.

>> That mean some sort of subject matter expert. >> Yeah. Yeah. >> It's not here. >> Yeah. What's the

>> walk away still? >> What was the wording you just used? Experiences or something like that. uh experts on experiences

back in South K. But, you know, I ignore a lot of phone calls that I don't know. I mean, I mean, you we should be a great source for them because I see

nothing that they've ever put out except come to our golf tournament and pay 250 bucks >> and I'm going where's this panel gone? They're also though highly connected with the national organization. >> Yeah. Yeah. We'll talk about the organizations in a bit,

>> Don. Right. Yes. Yeah. Uh I was okay because I wanted to get more involved, >> but either for for bad or or good. I do a lot of traveling these days. So I'm

reluctant to take on something that for example, I'm going to be gone the first three months of the year. So what I would suggest is that it would be good to get more and more members involved

and have a little team. For example, I would like to join Phil and a little team to help and sort of have training wheels. >> Yeah. >> And so I think it would be good to have

>> little groups. I I I I've kind of felt, you know, help each other out >> from personal experience and from, you know, hearing from Phil, it's like, yeah, it's a lot for the same people to be doing the task every single month. You know, if I was facilitating two meetings out of the year and I could plan ahead of time and swap off with

somebody else and be like, "Hey, I got a vacation I think that's going to come up here." You know, it's a lot less of a burden and it it frees us up to not to to allow us to be an infrequent help. So I'll list it as you know where can infrequent members help.

>> If I can just amplify on that I was with other organizations and my sales pitch for volunteers was this is not going to take a lot of your time. We'll have lots of volunteers doing little things so it's not a burden. >> Yeah. Yeah. Yeah.

>> I know. Well my experience in the last two or three months has been very different. And honestly Bill Lewis was taking on so much before. I would basically show up the day of, you know, four hours, I'm done. But it's gotten to be a lot more. >> Yeah. Okay. Um, so I the two reasons I

come and I don't know if this has developed the vision of mission is one is a sense of community. It's kind of walked on the steps I've walked in or I might walk in in the future and help me understand my future treatments for how

I deal with my walk forward. Those are the two drivers I think might be where we're all going because the sense community he's been through it talked to me about that and and what's the next step and how do we do that? I think those are a couple drivers for I think

membership and you know what does the jury look like? >> Yeah. Yeah. And that helps with doctors with new treatments and and and people talking about their experience. >> Yeah. And that's that would boost attendance.

>> Yeah, I think you know that is a pretty core like the group. I know Bill Lewis was like have the lunchons because it encourages this >> it encourages the sharing. It encourages the >> even the uh where do I have it the caregivers you know talking to each

other and stuff. And in fact like when we have the we used to do with the member roundts breakout groups it's like okay this group talk about surgery radiation active surveillance we need one for caregivers caregivers come together and talk about you know what it's like

John oh did I cover everything okay thanks John >> uh since I'm the treasurer I'm always looking to see where we can save money or make more money and one of the things uh is in our marketing with our videos

done each each meeting. It's a cost of $800. >> And you know, if you if you go up the whole year, we're talking about $10,000 and that could be used for a lot of donations to other organizations.

But but I talked with Aaron about that and we said maybe it would be best uh and the board could decide if we just videotape these special important doctors and not not just have everything because we've done an awful lot already

on YouTube and um um I don't know we have our new facilitator in this room. I think it's going to be a series of facilitators.

>> Might be. Might be. And we'll talk about um all the finances in more detail next. But but yeah, that's a good point. Like uh kind of in general like um our you know, as part of the vision of what we want to do is is is taping every single video uh worthwhile? For example, like

everybody loves Dr. McCay. You know, it's great to record what her comments are individually about people's cases when that she's as she's asked questions, but her presentation actually could be found a half a dozen places online already. >> Are we adding any value by putting up

another copy of of her presentation, especially when I think that her presentation goes over the the heads of a lot of us these days? >> Yeah. So, that's discussion. >> Can we have some idea of how many people are viewing our online? John uh Tassy

did have that info and I have a feeling that you know just based upon time it's a great thing that we do need to discuss on a a wide level but maybe we'll as as Mike was going to push me some of these are high priority to talk about today

some of these we need to identify perhaps what committees should discuss it and and when they should make a decision by right certainly don't need to like stop the videos tomorrow Right. We can make a decision on which which uh

which ones we're going to um uh video, you know, maybe in a you know, when we get back together in in January, we'll look at the the uh uh the future uh things. I know that at least February with Dr. Muntz and all the radiation guys, that's one of the high most highly

viewed and high and the messages I get back the most on. So definitely want to continue to videotape that one. So for the near term, you know, I think we got, you know, videos on, but it deserves some discussion. >> Just one question. >> Sure. Just and this is brief. What is it

that cost $800 for us to post a video? >> And so that way, >> the videographer is charging 500 and the editor is charging 300. >> Well, let's talk about all the details of the finance just in in just a minute.

We get into that. Yeah. Yeah. YouTube. >> Yeah. Yeah. Yeah. >> We got one more item for there. >> Last one. >> Useful it is. But, uh, you know, um, everything's AI nowadays. Uh, I I use it quite a bit, you know, and so I think

leveraging AI might be something that we could talk about, maybe um, >> at least have on the list. >> I think that's worth worth um, you know, for a couple reasons. You know, John Tassy uses AI a lot for some of the meeting uh writeups and so forth. We use

AI for generating all the summaries from a recording >> of the of the videos now, which I hope I'm good. Uh >> I hope it's yes, it is recording record this meeting. Um and um and the guy that I was talking to in Washington said to

me, "But AI said I should do this. It agreed with me when I suggested that this is the treatment that I want to follow." And it's like, yeah, that's what AI does. It makes you happy by saying yes to you. So, there's a lot of, you know, aspects, but it's, I think,

valid to be like, maybe we got to have a topic on it sometime. Yeah. >> Uh, guys online, uh, John Love, any any input here? >> Sorry, could you repeat the question? >> Sure. Sure. Sure. just any input on what

we've been um saying here in terms of new ideas for um aspects with the organization. >> I don't know about any new ideas, but I know that uh the things that I really appreciated was the excellent MCing that's been done by Aaron all along. So,

I think that's been crucial. >> Thank you. >> The the sharing of experiences is uh worth millions of dollars. I believe that's I think is key. and the presentations have been phenomenal. I think it's absolutely great. So, um I

I'm a firm believer in not fixing what's not broken. Um so, I think that the for the current for format works really well. So, um uh that's my take on the situation. >> Excellent. Vlad, I see you have your hand up. I'm probably gonna uh not see

that hand up, but go ahead, Vlad. >> My hand hurts now. It's been a couple of 15 minutes. Uh no, I'm I'm just joking. It's fine. Uh you know the way that I joined actually was if you remember Erin was when uh you have spoken in the

Qualcomm I mean I I work in Qualcomm and you used to work there. So you have shared your comments on one of the men's health uh webinars that actually was attended by a lot of guys from Qualcomm. So um seeing those comments that you

posted there actually brought me to the uh organization here. So what I'm thinking is that's actually a very good thing and you know if we can advertise in Qualcomm or uh whatever big companies

here people would be much more aware like I was. I had no idea until I saw your comments on the chat on that webinar. nothing to do with the speaker there, but just your own stuff there on the side basically. But if we can actually dive deeper into maybe making

that more straightforward with the companies and you know I don't know if that's even a good idea or not but it worked for me. Um so not sure what you think about it and did you even try something while you were in Qualcomm like something like that? Yeah, I've

I've added here, you know, when we talked about marketing info to other groups and conferences, you know, added uh companies and stuff and referring to was back when I did work, they had a men's health uh meeting, you know, for helping engineers and so forth. And I

got on the chat and I was like, "Everybody know what their PSA is? You should be testing it after age 40 and don't even need to wait until then." And people were like, "What? What? What? What's >> Exactly. Exactly." Yeah. Yeah. Yeah. So, it was um and that's how Vlad uh contacted me and got um joined the

group. Okay. Uh did I get everybody? Uh John John Tassy. >> Yes. I think a lot of good ideas have come out of this. I've been involved with the group since 2009

and there were a lot of hits and a lot of misses. H um I think the main thing we need to focus on is trying to get to the caregivers. Men notoriously don't want to take care of

themselves or take care of their health and they are going to be the last ones to go to the doctor and tell them I'm having urinary problems. I'm incontinent. I'm yada yada whatever. So,

it's the women, the caregivers that are there that drive the men to the meeting. I know it was in my case and a lot of others it was the women and you see them come. So, I'd like to see how we can

uh make that much better. Now, I remember uh I don't know if you were with us then, Eric, but we had a lady that was running that side

of it for the caregivers for the women, and that really didn't go anywhere. Uh I wasn't involved in that at all, but perhaps we could look at doing that again. >> So, that's that's really all I all I all I have.

>> Yeah, that's a good idea. And and I should also make a plug for John Tassy because he does a huge amount of work behind the scene to make sure things happen even at the last minute. So, thanks a lot for all that you do, John. >> I love it. I love GoDaddy. It's the best

in the world. >> All right. All right. Great. So, that's been about the first hour. >> I think I'm >> John. Oh, Bill. Sorry. You know, you got you did the end around me here. >> Yeah, I did. >> Yeah. So I think there's three things that I see as being critical to the

mission and and one is really member involvement. You know I I would like to see a member survey out there really like the voice to come from the membership >> which you know would include a little bit of a data strategy. You know how updated how are people connected? you

know, make sure we have that list and then um so really getting that information from the members which then could drive what what do they want? You know, what kind of speakers do they want? Are they willing to come? >> Polling is really simple. >> Yeah, exactly. A monkey survey or even

simple polling in in different stages. >> We can even dedicate half of a meeting to kind of doing it together as a group in terms of having a discussion and filling out a survey. So, uh, the second thing I really think is is a structure. Um, you know, I think at some point you

need to have seven or nine people on the board, you know, with minimum of five committees with at least two to three people per committee and really just have a a bulk of people with some structure to it where then you could set a monthly or bimonthly meeting. Uh, have

a paid lunch. People come, the committees just give a 10-minute overview of what their issues are, what their successes are, what their numbers are, what what they need, what they, you know, >> some experience with those buddies.

>> I think that that's critical. Um, and then, yeah, I think a core a core group of guys that are making the decisions. So, I think there are some things that need to be clarified in terms of okay, you know, uh the guidelines of you know the

boundaries of the organization for liability and or other things you know are we going to be the first line of contacting people and giving them advice just how to get their treatment or not you know um I think we we you know so we got to draw the line are we an emotional

support organization an information collection or you know kind of how to elicitate that out a little clear so that there's no confusion on that. As each of the committees go out and do their job, they've got that

>> as a base and they know what their direction is. >> Yeah. Yeah. And Bill raises a good point that we didn't um didn't really mention earlier on. I mean, I know I say at the beginning of every meeting, but like we're not doctors and we don't replace the medical advice, you know, we're here

to share our own personal experiences. Um but yeah, you know, like saying to people, you need to go and have surgery or you need to go and yes, definitely have radiation and go to this doctor. It's like that's actually not something that we should say, you know, it's opens

us up to liability of like, hey, they're kind of providing medical advice and medical care. You know, it's like, yeah, we we got to be careful about that. And I'm not always the most careful about that. I I got to admit. >> Yeah. And I think the last the last

thing is that there are a lot. Like Bill said, when you started this, it was unique. There wasn't a lot of things out there, but now there's overwhelming amount. It's actually more we should be more like a filter for the information that's out there. You've got ASPI for

those of us who are on active surveillance. Uh you've got, you know, which are global organizations. So you tap into their resources. you don't have to be here. This group should focus more on the fact that it's a local group and that we have

a face to face and we have social lunches and interaction and and of I'll say a common bond of doctors that are familiar to people because they're the ones that are available down the street. So, you know, really define that this is

not going to be, you know, we're not trying to make a worldwide organization out. This is for local event support. Um and and but I think the key is is having the list and having those resources. There's the you know cancer free

society. There's the um what's the del I I >> one of them was uh mean PCF >> PCI you know there's a lot of organizations really good organizations including

>> you know including and and then there's good meetings such as what's coming up next month at the UCSD. So making sure that we really have that information available to give to to people. And you know, I know there's a there's Orange County groups as I've been on there

online zoom calls. They have some good people, good good things. When I went up to the uh the summit, PCRI summit in LA, they had organizations that had booths that were the Santa Barbara area and

other places. So there, you know, so there probably is a national network of these kind of organizations that we could either form or become part of. So it's really about being clear about what what we want to what the mission is

having dedicated people to take on those roles with a given direction and then uh and then just you know tying it all together with distributing and accessing using AI using the internet using the tools that

we have now to to get the information out that's how I >> I want to make a comment but I told uh OBNO as I named part of this but you knew the dates of when the PSA machines

were almost installed in every fi place the local knowledge is really really valuable and I had seven PSA and PSNA scans you know 14.5 we finally saw some in September but it

was in the brand new machine in Hillrest so I don't know if it fed no machine. >> Yeah. >> You know what I mean? And it was just a shadow that made my mind up what to do. >> Yeah. >> So that kind of local knowledge >> I think is very very valuable with this the broad knowledge where someone from

Washington UK calls this too. >> Yeah. >> I did in fact have uh my uh um first guess at the committee structure and past so you can spread those around. There might be one for everyone. That was what Phil was taking a picture of

earlier. [Music] All right. >> Is there a restroom nearby? >> There is. >> You know what? Good break. >> Uh yeah, if anyone needs to uh go to the restroom, it's um right next to where you came in. There's like a hallway first on the right beyond like the

circulation. >> No interest. >> Yeah. When we take a couple minute break, >> go home. >> And and you know, some of them are friends and some of them are relatives. I don't have time. I don't even want to

think about >> and I'm just the opposite. I mean, I took my first PSA test at UCSD because it was just available and it was free to the public. >> You know,

like you're just a human. >> Yeah. fish. My printer failed when um printing these out. So, uh go ahead and um take a look and and then you can pass

it around a little bit. >> See if I can get some copies. >> Uh sure. There is a copy machine right here, but you might have to >> Yeah, you got to pay for it and stuff and you can do it >> without doing it online.

Have you spoken? >> Steve Pendergrass. >> Um Steve couldn't make it because he had a medical appointment um today. >> Yeah. But um >> uh >> maybe a little bit. >> Yeah. And and and actually uh John Tassy

updated the website to include all of um Steve Pendergast blog posts which is like almost a replacement for the newsletters. It's it's it's great. So Steve at least is able to continue doing that, which is great, but definitely

going to need some uh assistance soon. You know, when we were talking about, you know, backups for people and contingency plans and so forth, you know, that that all uh flows together with that. Um, so

yes. Next, uh, John, I'll I'll let Do you want to talk about the, uh, once the rest of the guys get back, do you want to talk about those expenses that you see there or, uh, do you want me to? >> Um, the only thing I'd point out is

>> that something 800 is already included here. >> Uh, yes. Yes. Yes. Sorry. So, when I did this, we can basically just compare income versus cost and that covers everything for the year. And then what I said was, oh, if you want to break things down into what a monthly meeting

costs, that happens to be that, but it is included in these numbers already. And even the annual stuff I think is included in this, right? >> Pretty good. I might have got >> donations

organiz >> but I didn't realize we were doing this >> because this is donations to this is

donations received. So we're giving a lot more. I don't know how we can do that. >> Oh, I guess we're burning down our understand this. >> Yeah. >> So, um

>> you know, he has monthly I don't know if that's by 12 really. >> That's true. True. You're right. >> 800 for videos. >> It's an outflow, but it's not like a necessary. I should have had it as like

you should have a completely separate column. >> Yeah. because we're obligated to give out money. >> I guess we only do 11 money. >> Yeah, we skip one. >> No, no, December is always

uh added. >> Well, only because the organization is not, you know, full speed. >> Yeah. >> Because if you start missing too many of them, you kind of lose people. >> It's like I can't count on you.

I think you made a good point about having a clearing house for information like I I pushed to Aaron to put up there on the screen about you know the YMCA programs summit every year and so it's things

like that that >> and then there's just so much on French county >> there's just all kinds of great information >> you I'm sure East Coast

>> I get a thing from Dr. New York City. >> Were you able to get some >> but he sends me email.

>> Okay. We uh started again. I think we just have um Michael's just outside, but he'll be back. Otherwise, I think everyone's here. >> It's really a lot of >> check.

It's January. >> I think it's January 31st. I went back and Saturday >> and it's really a nice facility.

another copy there. >> I went back and forth. >> All right, everyone. So, um, moving on to the the cost essentially kind of starting a summary from the finance committee here. Uh, the, um, the sheet that that Mike was able to make some copies of and just pass out. This is a

highlevel overview of of where what money comes in and out, where where it's used, you know, in a for a year, like so for, you know, 2025. um ignore all the columns at first for just except for the first two in first

three, >> right? The income and the costs. Okay, so um we do receive a number of donations and my guess is about half of that comes by way of PayPal and chat as opposed to the individual meetings themselves roughly. Is that your guess,

John? >> About half. Um, and from that we give out a lot of donations, uh, such as to the prostate cancer foundation, PCF, uh, ASPI, and John, remind me what other big ones are there that we PCR

>> PCRI. Thank you. Thank you. And I think that's about it, right? >> No, we've given some to American Cancer Society. Um, there's a whole bunch of um, what do you call

Oh, you did bring me prostate cancer foundation, ASBI. Um, you want I can send it to you.

>> American Cancer Society. Um, Unio Specialty Care Mayo Clinic. There's about a >> Okay. All right. Yeah. I mean, as a charitable organization, we are supporting the further research on

prostate cancer, right? We don't just take the money for donations and eat it at the lunchon and and you know you use it for you know all the rest of the cost and stuff. We we give a sizable we we redirect a lot of the the donations to other charities. >> We got to go with that message.

>> Yeah. Yeah. I don't I don't do a great I mean I kind of breeze over that a little bit when I um when I when I at my meetings, but I should be a little bit more explicit on that. The other thing I'd like to point out, when I send out some money, I say it must be

specifically. >> Yeah. Excellent. >> And and John also, I got to say, has done an excellent job with taking over the accounting. >> Yeah. You know, um a lot of work and

fixing a lot of things. He made $1,200 in uh our interest this year, which we were not getting at the last place. So, um there's a fair number of office expenses. Now, I I just kind of made a guess if you start looking at the other

costs uh cut out here as as website, the email tools, and insurance. I'm actually not certain that what fell under office expenses, but I'm trying to list all the major things here uh and and and where it goes to. Uh so like the insurance is the director's insurance uh that most uh

nonprofits uh do need to do need to carry and stuff. >> Um the marketing uh is is mainly the videos as you see each month. So I have the column for monthly meetings as a recurring thing. Um you know it's about $800 uh to uh record and and edit the

the videos. Um we also have other purchases such as the lunchons. We're spending about 275 each month uh on the luncheons and we have some one-time meeting costs uh to bring Dr. Lamb in uh since he's driving from really far away.

We pay for his hotel the night before. Uh a board meeting, this was basically uh the cost of of lunch for all of us to get together uh one time. Um we have some accountants that we have to pay and so forth. And then finally on the right there's a a a a checking account bank

balance as well as uh a separate in uh investments. So savings and CDs. And so if you just look at the income and costs, you know, certainly our donations that we give is is we need to give donations. We don't necessarily

have to give $24,000 each year. Um you know, whatever we can support and stuff. Uh but you can see we have plenty of money in the bank at near $47,000 and we've drawn that down by over $10,000 by increasing our donations this

year. Right? The money in the bank isn't really doing any good for prostate cancer. And so, you know, uh we want to give more of that money away uh and make sure that, you know, we're still covering the uh the cost of our meeting to and the website and so to to maintain

things. Have you pursued leg legacy gifts as a foreign nonprofit? >> Uh yes, there are a meaning like in people's estate plan stuff, >> state planning to avoid taxes on R&Ds. >> Yeah. Yeah. Yeah. I we should I should

talk about that more. Um uh you know, you know, asking people to to you talk with their you know, financial advisors about doing that. I on occasion we do get sizable gifts. Um, I think when one person passed away, we got something

like5 to$10,000. Um, there was also a widow of a IPCSG member who got remarried and they said, "We don't need any more stuff. We're 80 years old. Everybody attending the wedding, please donate to IPCSG, right?" And and yeah, I

don't know whether that actually came in or not. It was emails back and forth, but like that was that was the intent. So um yeah uh certainly legacy >> IP CSG you have a charity function a charity function tied to it

>> I mean it is I it's a nonprofit >> we we are a nonprofit we are a charity the donations are taxdeductible to you >> because I have a tendency to contribute to a lot of charities

>> I'm very well off I'm a retired engineer of 40 years and I'm 81 years old and I'm single, never married. >> Yeah. >> So, I have a lot of income. >> I have a lot of annuities, >> right? >> Charities, you name it, I have it.

>> Yeah. Yeah. >> So, that's good. >> Yeah. That's that would be fantastic you know and you know along these lines like if if you donate directly to IPCSG that money will pass on to other prostate

cancer u uh nonprofits as well such as we mentioned PCRI PCF American uh cancer society ASPI and so forth right alternately you you can also give to them directly too but your money will be

used for you know charity But but as an organization, you know, this is the first time I've heard that we're giving so much to other organizations. This should be on the website and at the monthly meeting and whatever you give a huge portion of it

is funding and have a list of those names, ASPI, >> what whatever they are. >> Yeah, I I agree. Yeah, we should reference them on the website and stuff like that. >> So, it's just not covering lunch. >> Yeah. Yeah. Yeah. No. No. In fact, I'm

going to ask people, you know, to start pitching a little bit extra specifically for lunch if they're sticking around. >> Yeah. >> Might bring up too when they're talking about people getting money is in addition to, you know, a direct donation, if they have QCs or EAFs, that

should be brought to their attention, too, to talk to their broker about whether that's a a way for them to my taxes. >> Yeah. >> What's that mean? >> I just started up this year.

>> Yeah. And DAFF is a donor advised fund. >> So like you can set aside a whole bunch of money. Like before I last year I retired. I set aside a whole bunch of money in a DAFF, took the charitable uh contri uh deduction and now that just

pays out money to charities and I don't have any other deductions now that I'm in, you know, basically a zero uh zero uh tax bracket. >> But if you have RMDs, it reduces your RMD for the year. >> Yeah. Yeah. That too. That too. >> Yeah. >> The only thing I'm a little disappointed because if I write the check, I want you

guys to have it. >> Yeah. >> I don't want you know the nationalization. We don't know what goes on. I Right. >> You guys could to use it. >> Okay. >> And so I don't know how many other people said you didn't know we gave that much money.

>> Yeah. >> To other people. >> Yeah. Yeah. Well, I mean, we certainly do have the expenses, you know, go going on too. Right. I mean, >> you have to be careful that you don't over advertise. Don't buy them. Spray the other day. >> Right. Right. Right. I mean, there's $3,500 a uh here in that monthly meeting

in annual columns, and that's not really even reflecting anything. And that is actually the cost uh of our uh organization that those donations are being used for as well. >> Well, I understand your point, >> but yes, yeah, I we should allow for

saying I want my money used for this purpose. >> But that but then I' I've done some work with Prostate Cancer Foundation and Holy cow, you're rock stars. Yeah. >> So I think we need to put a a surround it if if this organization is choosing

the PCF or choosing a mail. What is it doing for our Ken folk or for our our community? >> We we need to make it so that people giving us donations are comfortable with what we're using the money for if we are passing it on to organo is the one that

did the P PSMA quite on. Yeah. Yeah. Okay. Any other questions on the expenses? All right. If not, I'm gonna I'm gonna move on. See, hopefully I can I covered everything. Um,

you know, and and as John had mentioned before, I think we got to have a, you know, discussion about how often we have, you know, lunchon expenses or the video expenses. Let's table that to to the next meeting. But it definitely something we should we should discuss >> committee meeting

>> to to a committee meeting. All right. The next thing I have is uh the facilitator committee >> me. Um so the number one thing kind of is how are we gonna replace me? >> Yeah. Um, one of the ideas I had, as I

kind of alluded to, was, "Hey, can we have two or three facilitators, you know, and rather than them only like I've had John Love uh come and stand in for me one day when I was um taking a vacation, um he did a great job, right?

He did the day of tasks. He didn't necessarily do any of the, you know, setting up presenters and so forth. Um, when Bill Lewis was doing all of those, uh, tasks behind the scenes, um, and handing it off to me at the last minute, there's a little bit of confusion, like,

hey, wait, who am I talking to? Like, who am I scheduling this with? There was even one guy who had the wrong date and then ignoring the date that I told him like, you'll be here Saturday, right? Or, yeah, you'll you'll be here Saturday, right? Um, and so I'm I'm

wondering if, you know, if we identify two or three facilitators, you can sign up, say, you know, look at the schedule for the next year and volunteer for, hey, I'm going to run the February meeting, I'm going to run the June meeting, right? And uh uh um work on um

you know, maybe you're even given the topic of hey, we're going to talk about radiation this month. We're going to talk about active surveillance this month. and then that facilitator works on recruiting a speaker and doing all of those those those tasks that we have here. You know, dividing this role up

that way would make the role a lot easier. And that's kind of my take on that. >> And having the three people get some of the sound off of to help do it all the time. >> Right. So, which three of you are going to do that?

>> I can do four. I mean, I time I think I pretty much said in complete sentences, so I think it was okay. >> I don't think I've picked anyone. >> I didn't expect anybody to raise their hand that way. But, you know, that's kind of why I do at least.

>> Excellent. >> I know the first six months of the year, my wife and I got a pretty aggressive travel. >> And see, this splitting it up that way is perfect because like I want to take a couple vacations. You want to take some vacations? I'm sure you do too. But

together we can at least plan other than just at the last minute who's going to run the show that month. >> Need to get a calendar >> and start to slot Mark me, you whoever else because I'm sure couple other folks are going to raise their hands and take at least a couple. >> I hope so. I hope so.

>> Maybe in >> so at least the three of us can start as our own kind of committee talking about how we're going to do this. >> Yeah. And I think that's a good um >> a good start. Yeah. Yeah. A good uh

momentum group or whatever the proper term is for it. Um anyone else want to chime in on ideas about that um that I didn't mention, you know, um you either you guys well or

does somebody say like, "Hey, Erin, no, that sounds like a terrible idea. I got a different idea." Well, one of the things I was thinking is if if we can get together the whole team >> is what would we like to cover in the to oh, it's the 11 months of the year, >> right? >> You know, and get the get the whatever

we call that a group together saying we think >> we should hit these 11 >> topics. Absolutely. No, I agree. I agree that that would be great at, you know, planning out ahead of time because at times it's been like, oh, we had an imaging guy back to back with another

imaging guy like, yeah, yeah, but, you know, many times we're just behind the eight-ball like I can't get anybody. This is amazing that I've got um people signed up as as much as I do. So, here actually is the forthcoming meeting schedule for, you know, I have um it's

2025. Sorry, I have uh please do share. All right. I hate wasting a lot of paper, so I uh I printed out fewer copies. But >> in terms of meetings for the upcoming year, um

let's see, >> we do have, >> you know, February, arch, uh sorry, February, March, April, and June already lined up. >> And that's that's like the best we've had. That's the furthest out we've had lined up in ages. On top of that, I have

two more pe two more presenters that have agreed and I just said, "Look, we're scheduled six months out. I'm not going to force you to put something, you know, agree to something now." You know, when I was asking them in October. So, um, you know, we might be already out through July, not even relying upon

doing a member round table. >> So, a lot of that is already in place. Good >> say. someone that hasn't come back, hasn't been at a meeting for a while. >> Yeah, >> you might want to

give her a go. >> Yeah, I I had um I had wondered about that too. And um um the last time uh she she's out at Desert Imaging. She

does a focal treatment on uh using uh >> LA laser ablation, you know, and that and we've had a couple we've I've definitely seen more interest in focal treatments um and getting getting people to come in and talk about uh focal treatments. I

kind of thought with Bernardet last time she spoke, she was kind of like not really anything new. were just trying to go through the trial phase and get through, you know, it was I I kind of felt that maybe um if we had her back again, it would just be a recycle of

exactly what we what she did three years ago. >> But but you're right, it is good. >> That's >> But she got new me new members like me as well. You know that >> Oh, that's a good point, too. >> Things are changing fast. I think in

three years there's got to be some kind of an update. >> Yeah. Yeah. They've been doing that >> and um >> I got a friend of mine going through right now >> the laser focal. >> Yeah. >> Okay. >> And >> because he just has that one quadrant

and it seems to sound it wasn't available when I was going through it but >> right it is current. >> Yeah. Yeah. I mean I think that last time she spoke she'd had like 50 patients >> during this develop like Yeah. Yeah. Yeah. >> All right. So, you know, that at least

is is some of the meeting schedule. Um, >> that's good job. >> Coming forward. >> Yeah. So, um, moving on to communication, marketing, and outreach committee. >> Can I talk? >> Sure. Organizational step, logistic step

today. So, we've got officially 33 minutes left. >> First question is, has anybody got any time constraints? Can anybody stay another 15 minutes or 30 minutes? If we looked at each other at 12:00 and said, "We've got a little more we can do today by next day." I

>> Yeah, I can stay till about 12:30 at the at at the latest. Sorry, Bill. You said you had to leave right at noon. >> Yeah, sure. For sure. >> You got that? >> So, I I can stay a little bit later myself, too. I'm not sure if we're kicked out of this room. >> I doubt it at lunchtime, but you never

know. >> You never know. And what are our what are our must completes that have to happen today because we've got two minutes left. >> Yeah. Yeah. I I have three more committees to to go through. I think

they'll be fairly fairly quick, but I think then that we definitely need to talk about um I guess when we're going to meet next and if it's going to be in subgroups either then or even before then and what those subgroups might be.

>> Think you're going to want another meeting with this group >> polish everything you leave here with a lot of thoughts and ideas and oh damn I didn't say you know >> and we want to write those down. I'll just go ahead and make that speech right now. So, if you've got somewhere you

keep notes, um if you get a thought about this meeting in some place, don't let it just fly out of your head. Write it down, preserve it so the next time we get together because that's valuable stuff. That's what's making this organization. >> You're going to send this out to

everybody? >> I will. I will uh write these up as notes. I'll send those out. I will send out pretty much everything in these spreadsheets. Um, I'll email it all out to everybody as well. >> That's a lot. >> Yeah. Yeah. Cool. Cool. Um, so yeah, let

me go through these these groups uh real quick. So, communication, marketing, research, what what does that all entail? Where did my committee list go? So, some of the tasks, that's

what all of this is right here at the moment. Um, you know, this is, uh, you know, John Tassy on the website, Steve Pendergast on the on the newsletter. Um,

in the in the past, Bill Lewis uh was actually uh paying a consultant to um post stuff on Instagram in order to try to drum up uh new members and um get the message out there. Um, I have recently

asked a family friend of ours, uh, Bethany Wilk, to assist with the layout of the newsletters that Steven Pendergast hasn't been able to do. Um, that's been a little bit slow because Bethany is also has had even more

turmoil in her life in the last two months than I have. Um and so yeah, newsletter as part of a newsletter, uh Stephen typically runs the sum the recording of the prior meeting through AI to get a a complete

um transcript of it, which is one of the big reasons for recording the meetings. Um newsletter formatting. uh as as far as John goes, you know, he's doing all the website updates. So,

you know, he sends out the meeting announcement uh in the the week ahead of time. Um he used to send out the email uh with the newsletter attached. Um he's monitoring the email box uh which is something Bill Lewis you know used to

do Gan used to do as well because we have that you know contact us page on the website and a lot of times we've not been responding to those messages at all you know for probably six months we uh kind of ignored it and it was like oh wait I guess that was something Bill Lewis was doing and here's all these

messages that piled up. Um and in you know included in this the also the video uh recording and editing uh that that Bill Manning does and I've thrown in here a line on member survey right so when we were just talking about

uh yeah what is it that um the members want what topics do we want to have uh meetings on and so forth you know what experts do we have what people out there have had which treatments and are willing to share their experience either as a member round table or as part of

the you know new member uh reception committee. >> I think that's huge. >> Yeah. Yeah. >> We're all going through our journey. >> Yeah. >> And we came up with a huge I don't know a year ago I was saying like oh I'm going to put together this survey and I dropped the ball on that. Steve Pendergas came, you know, rant through

chat GPT. It generated a fantastic survey that was so long I didn't read and I just dropped the ball on that. But it is like a really important and useful thing and I think it would be something for this committee to to take up and work on.

>> I think something uh regards to that member survey would be uh you know at every meeting that might be an availability you hand somebody a piece of paper you know any any comments or questions or u anything like that. I realize it might already be on the on the new member form but you know those

repeat members might have a new idea about or question something like that. Yeah. A comment box. >> Comment box. >> Yeah, a comment box type thing. >> Yeah, that'd be great. >> Yeah. >> All right. Um, John, uh, Tassy, uh, do

you want to add anything on that? Because a lot of this was stuff that that you work on. >> Well, um, it's just going smoothly. Uh, I'm having no problems and if something comes up in

the inbox, I go ahead and forward it to whoever if I can't answer it. So, that would be good to get some history on the folks on on this board here so that as things come up, I can

forward to them the email directly to be answered. >> Yeah. Yeah. Yeah. I think if we formalized the committee, you know, essentially you'd be getting that those emails. I I I think we do need to take some steps rather than just like, hey, I'll start replying to emails tomorrow.

We got to, you know, especially perhaps have a meeting with with Bill Manning, myself, and like what are the types of replies that we get? You know, >> the other the other thing I'd like to to add is since we're a nonprofit, we can get a uh a Google nonprofit

uh setup to where we have a Google Drive free of charge that we can then start coordinating through that so everyone gets the same information. And I'm doing that currently with two other organizations and it is fantastic.

>> Nice. Nice. And and you know, thanks for bringing that up because you know, Bethany Wilk has worked with a number of nonprofits in the past, has done newsletters for them in the past, and she came to me with a bunch of ideas and said, you know, as a nonprofit, you can have these tools for free. You know, she

already knows how to use them and so forth. So, there are more uh um tools and and resources out there for us to use as a nonprofit um that that could be useful as well. All right. Anything else, John?

>> No, nothing else. >> All right. All right. Great. Okay. And I've kind of already said stuff about new member reception. Bill, do you want to add anything other than what I've already kind of said? >> No, just having a proper mechanism for

it. >> Yeah. Yeah. And and I think one of the other mechanisms that you guys had in the past was for example you talked to all the people that came in that you know active surveillance seemed to be either what they were doing or seemed to make sense for them that they might need information on that. Whereas somebody

that walks in and says I want radiation I just don't know proton versus photon right and direct that to somebody else who has experience you know in either or both of those. Um so that's what that entails. Um, and then finally, welcome

committee. So that's that's Phil, that's Mike, that's Vlad, that's Mike Corass, who isn't here as well. Um, Phil, anything you'd like to say uh about about this? How the lunchons have gone? Obviously, you've you've mentioned, hey,

it would be nice to have a little more help. >> Uh, yeah. Well, um, I'm, you know, happy to do it. Uh it's just uh I'm I'm kind of seeing the future for me as I'm like to do a little more traveling and so you know if I could do you know we have 11

months to cover uh we could do you know I could do half of them you know pretty easily probably >> but I had one thing about the 11 the 11 months and he had it on here is that in January you know we have the local UCSD

summit so maybe we should be a 10month as long as they run that summit, >> be a 10-month organization and encourage them to attend because it's a fantastic uh opportunity for them not only to talk to doctors, you know,

>> uh you know, face to face, but there's also a lot of related corporations that are there also. So, you know, I think I think we ought to really seriously consider a 10 we're a 10-month organization. >> Hey, I agree with you on that. That's kind of why I did it this time around as well as I didn't have anybody lined up

for January, per se, >> but we need to advertise it with our 900 members. You know, get your butt out of the seat and go downtown San Diego. Yeah. >> And and be there. >> Yeah. John, can you uh remind me, did we send out an email kind of advertising that?

>> Uh I believe we actually have something on the on the website, but uh who was just speaking about that? >> That was Phil. Yeah, Bill Young. I'm the lunch guy. >> Hey, Phil. Uh, drop me an email. Let's let's talk about that because I'd like

to get as much information that you have that I can update the website and I'll put that in. >> Do do I have your email address? Uh, >> oh, John, it looks like you might have uh hung there.

>> Yeah. >> Oh, no. But um came by. >> I'll I'll make sure that you got you guys were on both. Uh >> John, both you and and Phil were on one of the emails for for this particular >> Right. That's John Tassy. Right. >> John Tassy. >> Right. So I'll send him an email.

>> I have a question. You say 10 months. So that's if December and January, >> correct? >> Okay. >> Yeah. Yeah. And it's it's a little bit late because like you know one year it was February 1st you know uh this year

it's January 31st >> you know it's kind of like halfway in between our meetings. On top of that uh Dr. Muntz when do I have him coming in? Is he in >> February 21st? >> February. Yeah. So at least it's three weeks after that. But I I I think one

year we had McKay and Muntz and it was like every two weeks we're hearing from UCSD if you include that patient summit and it's like you know it is nice to spread that out a little bit a little bit and I think actually in February that's actually the third Saturday.

Sorry, no it's regularly the third. Yeah, he he just didn't want to come on a long weekend, >> which that's also something to consider when our meetings land on a long weekends like in January like it usually does. Um, a lot of people are out of town. A lot of speakers don't want to

sign up for something like that. So, January is a good month to skip. Okay. Uh, all right. Vlad, anything that you'd like to add about the signs >> and and welcoming people?

Um, no, nothing really. I think, uh, Mike and I have a pretty good thing going as far as those activities. We're able to kind of step in for one another. Uh, when one is out, the other one is helping. So, I think that might be the

good way to, you know, do other stuff, too. Um, yeah, because people will be traveling and absent and so on. >> Yeah. Yeah. Um, definitely. Yeah. Both of these guys, you know, it's been great that they show up an hour early to do those signs and and put them away. And the signs just end up being left at at

uh in the audio in the AV closet there at SBP. Um SP has been great uh to allow us to leave materials there. Once in a while, neither of them can make it though. And so I get the phone call and like, "Hey, can you do the signs this month?" And it would be nice, you know,

here's an example where if we have a defined welcome committee. Um, hey, can that committee take it of themselves to not have to go up to somebody else such as me, such as the facilitator to ask for that uh that help, you know, let's

have one or two additional people. Um, and this is a really easy case because it's like, all right, just show up an hour ahead of time, right? you set up sometimes if you're showing up anyway like you're just getting up out of bed a little bit earlier. Um but but that's the type of thing where I'm hoping the

committee structure can be a little bit more self-contained. You know, handle their tasks uh perhaps have a lead in each one of the committees and amongst them figure out everything that that they need to do.

Okay. >> So, that's kind of it on what I was going to say about committees. Um, before we talk about like next meeting, um, you know, where and when and so forth, want to go around the room. Anyone have any more comments that they

want to make right now about any of this stuff? >> Like to see ABC prioritize the >> Let's do it. Let's do it. All right. So, what Mike's referring to is, hey, we got some really high important things that

we need to do now or uh, you know, kind of get moving on. There's other things where it's like, hey, you know what, maybe we don't need to even discuss this before the next meeting. So, and it's going to be tempting to go, oh, this is

important. Make it an A. >> You can't have all A's. >> You can't have 50% of A's. Yeah. So, so just keep that in mind while you're considering. >> So, a is start now report for next meeting

like we have made some decisions and we're discussing we're informing people of the next meeting what what is being done or what needs to be done. >> Moving it forward. >> Moving it forward. B would be what? >> Well, B is um well, think about it as A

is what I can do. is actionable now. B is important and it could change to an A by the time we meet again. It could change to a C. C priorities are yeah, it needs to be done, but we've got some more.

>> All right. I thought you were Franklin, right? >> So, in terms of um what time we got? We got 18 minutes or so. um alternative treatments. This was we want to broaden

the uh the speakers to include more alternative treatments. >> So that doesn't require just a little qualifier. Let's put a qualifier on these so everybody knows how to vote. So there you go. That's just something that says, "Hey, can we have this on our topics calendar?" So it has no action

other than a facilitator that's going to be involved in bringing an alternative treatment speaker for hypothes that up too and different as far as

action but I think that'd be a good one. I think everyone wants to come up >> but but here here's my take on it is like do we need to identify an alternative treatment speaker by January? No, no, you're 100%. >> So, not an A.

>> B. >> It's a B. Everyone agree. B. >> All it needs to do is end up on the facilitators. >> Sounds good. >> Social connections with exchange ideas. So, this is kind of like perhaps adding into, you know, our meeting format or even having additional

uh, you know, let's meet out for dinner some night, you know, type of thing. You know, other activities beyond uh what we're currently doing. Well, the spirit of that was, I believe, was let's somehow we need a strategy to enhance everybody talking and touching everybody

on the shoulder and say, "Hey, we want to chat with you." Abid. >> Yeah. >> You know, we can do stuff afterwards, too, but that meetings, that's where the juice happens. >> Yeah. >> Because you're right there. Yeah. >> Yeah. Be again. [Music]

>> Yeah. Yeah. I know. It's a little bit tough because like we can't have lunch inside of the room, but I've noticed people have gone outside and sat around some of those tables, which is which is nice. >> Um, contingencies, you know, for facilitator, mentors, succession, and so forth. >> I kind of think that's that's an A

because that's part of like, you know, getting you guys on board with facilitating, having a backup for John that also knows where where the money is. Um, that type of thing. So a >> uh last minute change of meetings. So this is having a contingency plan if the

speaker cancels. >> Thanks. >> That's an A. >> Yeah. >> Do we need to So this is like formulate a plan. Do we need to do that before J by January? >> So >> say a B. >> Okay. Is everybody else okay with it?

pretty deep. >> Do you want >> more caregiver presentations and resources? >> I mean, it's and it's kind of in line with, you know, this it's kind of like

changing the meeting format to either have an additional presentation on this topic, this topic. So, it's kind of the same, I'd say, as as this. And we're starting to have a lot of A's and uh increase scope beyond uh PCA and

define focus. >> That's a safe. All right. Uh YouTube summary description search engine friendly. >> So that would be somebody who takes that task on or persons take that task on. So

how viable is it? Do we have do we have a minefield out there right now that we're trying to avoid disaster with or is that is that like did it better? >> Yeah. >> I I could see this being a seat, right?

However, you know, I see this kind of landing in the communication, marketing, and outreach group. So, you know, if once assigned to a committee, the committee can be like, "All right, here's my tasks like, oh, I'm gonna rearrange this and start with this one. This is kind of like my A." The C should be dealt at a committee level with a

smaller group. >> A is like we got to get this >> strategy and things in place. B is actions to do individually or >> good point and C is get some people

out. >> Good point. So the more people involved the higher priority. >> Um advertising, marketing, info, other groups and conferences and companies as well. Uh and this is not a reflection on on how much we enjoyed the ideas that came

out of anyone versus uh more people attending and uh interacting community. It's a little bit about like the social connections as well, but um could be a duplicate. Do you guys all consider that a duplicate? We could line it out and have fewer items focus on.

>> So yeah, to the second one. >> Yeah. >> Number two. >> Yeah. uh qualify info about email database. >> Well, that's like communication strong

members. It's definitely >> I I I'd agree with that. >> Agreed. B. >> Okay. 79 people with five committees organized uh by U meetings. I think this is kind of an A. We're kind of >> getting going along those lines now.

um filter for organizations already out there uh we are local. So this was um hey do we redirect people to hey go talk to or go look at the PCF website you know or hey let's get together and talk about this type of stuff in person

>> is that in line with what you remembered that >> or the grand scheme of things first we got to have skeleton that we can start so the skeleton see

>> stop me if nobody People don't agree to this. U more info on side effects. It's kind of a it's almost alternative treatments and >> not necessarily alternative treatments is category. >> You're right. You're right. You're right. You're right. It's it's almost

part of the caregiver. >> It's not that level. >> It's about information distribution, which is sort of the part about are we going to work with the other organizations? Where are we going to get the information? and how are we going to feed it out to the membership? >> That's that's a good point,

>> right? When we say that we're local and we're providing like, you know, local, you know, camaraderie and so forth, these are the questions that come up at that time. >> That also though, that's why a lot of people are there. Side effects, treatments. >> That's true. >> Yeah. >> And so I I

>> Well, we don't need to have it done by next meeting or anything. >> So it's not an A. Right. Right. >> Not an A. Not. >> But I like B. What's that? >> B. How many for B? >> Okay. I think that was about half. So, I

won't even ask you what C is. Uh, future fundraisers. Can we make this C? >> Uh, caregivers getting them together. >> Sorry. Which one?

>> Oh, where it says Oh, sorry. I thought I saw it. >> Right in the middle in the middle. Sorry. >> All right. >> So many more than four. >> Uh process went out. >> Yes. >> Okay. >> All right. Uh we lose people once cured and in remission.

>> That's a C because it's the whole strategy about communication media touch, you know, touch points with them. >> Yeah. Yeah. Identify experts on experiences. >> So I'm thinking it's a B, but I think people want to hear, you know, I'm now

just starting the hormone therapy again after 11 years. people want to hear that stuff, but it's a B. But I think it's good for meetings. >> I kind of agree. We've kind of lost a little bit of this, you know, not having the breakout sessions at the round table meetings. Um, and I've lost track of who

has what experience and so forth. You know, this can kind of even come under the the need for the database one, you know, like the database of, you know, who's had what treatment, you know, are you willing to share your your >> Everyone okay?

>> Yeah. Uh where can infrequent members help? I'd say maybe uh >> probably it's going to fall under a committee meeting. >> Yeah. Right. Committees can decide, hey, this is the task who we got the people

we got. We still need more t people. Where can we get more people to help? Uh shared experience on >> look like the one two above. >> Yeah. >> Like identify experts on experiences. Shared experience. Those are kind of combined, don't they? my brain working out.

>> All right. >> Where to save more money? Committee level for um for finance. >> Yeah, I think it was save and make more money was originally >> discussion. Generate, save, generate. I like that. Save generate or just improve

the budget. >> All right. B or C. It's kind of kind of a B. It's kind of reward. >> Yeah, I think it's worthwhile. >> Yeah. Um, uh, video fewer meetings, uh, they say

overlap elsewhere on YouTube perhaps. See, >> see very >> importantly discussed, but I think starting at a committee level either the marketing or the probably the marketing um, of like what's what else is out there and so forth. uh leveraging

leveraging AI as a a new top another topic probably the same as B >> well I think it might go across a lot >> yeah I think that's like to look at it from the A level across all the orders

how can you use AI >> that's a good point >> too >> that's a good point for the social media and all that I'm an ammer chisel guy that's developed and I don't know what to do with that. I can make soft max runs twice as fast as anybody else, but

>> nobody knows what soft max is. >> Um, member survey. Oh, sorry. So, everyone agree a on leverage AI. Is that all right? >> You got to figure out what the actual action steps from.

>> How can they find everyone? Uh, member survey. What do we want from my PCSG? I think that's important too. >> That's going to Well, >> actually, won't that dictate our programming and our meetings and

everything? >> That's how >> I think it needs to be taken on by the whoever is going to be on that board. >> It's a high priority at a committee level that kind of then has to be presented to the overall group. >> Yeah. >> And be like, hey, is this a good survey to ask everybody?

>> What's that? >> It's at least a B+. >> Yeah. How about a A? Everyone >> put it on A >> B. Who wants B? >> Yeah, B plus. >> I think I think the challenge with that is that it's it's kind of a it's not something that's one and done. >> It's something you got to do every month

and then it's going to have to be, you know, brought forward and and and continually discussed, not just once. So, yes, I don't know what that puts it, but that's what I >> I'm putting it as an A. We've got one, two, three, four A's. That's not a whole lot.

Yeah. >> So, we got space boundaries of liability. >> Um, probably be >> thinking of it. Do we have an attorney that donates a little bit of time that we can pop a question to here and there and does this kind of stuff?

>> I was going to make a joke, but I was hearing >> I think that's a good question. >> It's not a well formulated joke that one uh recorders. >> Yeah. Yeah.

>> But I do think Senator committee or I'm up there talking and I don't realize, man, I can't go out and you do a very good job. We do not substitute your doctor's opinion. But I think it's got to be drilled in all of us that we know

those rules. >> So we don't I don't do something stupid that puts you folks in liability or the whole organization. >> I almost think this is an A. So if we consider what is the purpose of the new member reception committee, this is like the first thing that they got to

discuss. What are we allowed to discuss and what can't we? >> So good legal consultation to be part of that. >> That's one thing you can do to um as just a

starting point is whenever you can have a conversation, you start with um I can't tell you what to do. Yeah, but this is what I pre from you have a and actually having that flipping quote to remind our you know what

>> a Miranda card you know no I don't represent the organization. >> Yeah. >> Yeah. And you know that's along the lines of of when people have said to all right the doctor level with me if it was your brother what would you tell your brother to do? Because it's kind of like

redirecting like ah this is what I'd tell my brother. I'm not telling you what to do, but you know, it it does. It's kind of like a little bit of a loophole there. >> Um, >> check. We've got five minutes. >> Five minutes. When do we want to get together next? When Okay. Um, this was a

little bit too close to Christmas. I apologize for that. There were a few people out of town. You know, Vlad's out of town. Um, uh, John Love might be able to might be able to attend if it's the first two weeks of January. And I'm kind of just guessing.

He didn't tell me that, but yeah, he starts back up at SDSU, I think, in the third week. Uh, what do people think about meeting the second full week of January? So, between >> 12, we get a 12

And the 31st is the one for UCSD, right? >> So yeah, 31st is UCSD. >> Um, Friday, >> you know, I could see a meeting at uh sometime either the the the later half like the 8th or the 9th or between the

12th and the 16th. Is that too early for anybody? >> 14 15 16 I'm >> Okay, you're out. >> All right. Um, Bill, uh, I know you got some constraints. What typically works for you? >> Middle of the day just like this and

then there's different days that have different dates. So, just pick a day and see if it works. >> Okay. >> What about the week of the 19th of January? I think that's too late if we're going to get like uh Jim uh sorry, John Love uh involved at all. But um you

know, otherwise is is Are you not around earlier than that? >> No, >> you're not. Okay. Um >> but I'm I'm just the lunch guy. So >> yeah, >> you don't need me. You're not the lunch guy. Yeah. Um, >> we like >> I just kind of like the idea of of

starting a little bit earlier in case we want to meet even again uh or kind of have some discussions at committee levels prior to the then February meeting or something. >> Yeah. February meeting. >> Yeah. Yeah. So, um, uh,

why don't I propose, uh, by email, uh, something between the 7th and the 13th? Anyone really out of luck on those days that wants to be really involved? >> No, I don't want I don't I don't need to

be really involved, >> but but I'll be out. >> Yeah. Okay, then I'll aim for 7th to the 13th. Where do people want to meet? Was this a good location? Was the midway through the 56 a bad idea?

>> We have tools here. So, this this was a good >> I like I'm in North County and then people south center >> now. Yeah. >> People out east on the eight. This is difficult because you got to drive all the way up to the edge of the 56 and

then kind of come back down through and so forth. something meeting in say like Seno Valley area or West Carmel Valley is just as easy for them as to or or easier than trying to get to here. >> Yeah. >> Um

who who who comes by way of the 15 on that side? >> There's there's Bill >> come the south on the 15. >> Uh you're Yeah, you head south on the 15. Come this way, too. >> And and you're up there as well. Okay. I I kind of like this location myself.

Kind of think it's >> machine outside. I mean, there's two. >> This is a great room. I mean, like my library doesn't have this. I think I'm going to move up here. >> Pictures to dance around so we can put up more posted events and stuff like that. >> Yeah. Yeah. Yeah. So, I'll aim for what

time what times are available here. We might be constrained on that, but I'll aim for a 10:00 a.m. Again, >> um how important it all. >> Yeah. Yeah. Yeah. They will. >> Yeah. Because they love their grandfather. Yeah.

>> I mean they they don't allow uh the same group to have a meeting more than once a month. So like well worst case we got to meet somewhere else. The second alternative was uh well for one thing they have a second room here which is much larger more like an auditoriumish

type of thing. Um and I'll go take a look and see what that is. But the other alternative was Rancho Bernardo Library, which would have been been at the east end of the 56. Is that a a no way for anybody? >> Yeah, it's a hassle. >> That's better for me. >> It is a Yeah. Yeah, it's it's a hassle

for me, too. >> Yeah. >> But by 10:00, at least 56 cleared up. >> Yeah. Which is >> I had no traffic getting here. I was amazed. >> Yeah. Yeah. >> And I left my house at 9. >> Where where did you live again? >> Uh uh Claremont. >> There was a thing going south. I had to

go to All right. So, aim for here sometime between the 7th and the 13th. Uh, 10 a.m. >> All right. Any other business for this

meeting then because we do have a few more minutes kind of. >> So, what violence? >> What do you want to have? I think it's going to have to bring something to the beat or you know put a vision out of each a vision or a purpose statement and

the key you know key criteria for each of the meetings. Okay. >> You know, either like in a goal format or >> Okay. And and and maybe even we should just say right now like for example, I know that I'm going to meet with with

Mark and Mike, talk about facility uh uh facilitator stuff as a committee before them. Is any other um John, do you feel like you need to get together, you know, with anybody else other than like me because

anybody want to volunteer for helping out John with the accounting side of things in the finances? >> I think more it would be useful for people to volunteer to help work with uh

John and and Stephen on the communication side of things. some of these things in regards to like a survey. Who would like to work on putting together uh a straw man for a survey that we could, you know, provide some

feedback on when we meet in January? >> I'll do that. >> All right. >> Don't you already have a name? >> Marty. >> Marty. I was going to say Martin. >> Close enough. That's what it is. Actually, >> I thought you already had the survey done by Steph with AI. Well, that's the

thing is start with what Stephen Pendergas had done and you know uh refine that, right? Because I never read through it. I need to read through it and be like, is what is this asking? Is this covering what I thought it was at least going to? >> Yeah, you got something to look at. >> Exactly. Exactly. Um, so Martin, uh,

Marty, I'm going to add you to this committee. >> Sure. The numbers are question. >> Anyone have a committee? really >> um

steal I will email this out. >> So um >> I can help you with >> Yeah. Where do you live? Up in North.

>> Okay. So I'm I'm volunteering John Tassy and Marty and Steve Pendergast for the survey. Anybody else on the survey to get together and discuss the survey prior to the January meeting? As long as I have a lot of utensils and things,

>> who wants to spearhead it? >> I'll spearhead it. >> Okay, John. Okay, great. and and get Steve Pendergast involved because he's he he did so much on that initially and I think John and and Steve at least had

the thoughts that I had originally had as well and can pull that together. So that'll be that'll be another >> Do we wait for someone to reach out to us so we get our heads together in one place one time?

>> Like the three of us? >> No, for the uh >> Oh, for the servant. >> Serve. you want to uh take care of getting everybody together either over emails first and that's fine. >> Okay. All right. And just contact me for everyone's email. >> Perfect. Perfect.

>> All right. Um >> Thanks so much, Bill. Take care. >> Merry Christmas. >> Bill and I spoke about rejoining the new member. >> Great. Great. >> And I

trying to remember your name now. Neil Neil um >> Nation right again >> yes the new member >> new member okay yeah

>> no you know Bo he's attorney for solar turbine >> he's on the board with me is standing >> behind All

right. Thanks for letting me keep that. >> All right. Back down. Yeah. >> Um, >> right. You're going to >> 163 in Claremont Mesa.

>> 163 in Claremont Mesa. I can Yeah, I can do that if we take off now. I got to pick up my daughter from school at 1. >> Okay. So >> that's right. It is a Friday. >> Yeah, they get off early. >> Yeah, they're off for the holiday now,

aren't they? >> Wrap it up. Thank everybody for being here. I think we got a lot covered, a lot out there, and we see the energy >> and the need to support this group is is there and now it's just, you know, a little bit more of the picks and shovels, right? >> Yeah.

>> Yeah. John Vlad, thanks a lot for attending online. Sorry. >> You guys have a welcome. Happy holiday. All right. >> Take care. >> Take care. Yeah. Happy holidays to you, too. >> Bye. >> Bye.

>> Bye. >> Thank you. >> Yeah. Thanks a lot, everyone. >> It's just positive.